I am once again sending you info about this study that Kristy is undertaking to try to improve the ED experience for us when we take our family member in crisis to an Emergency Department at a public hospital.
You are invited to participate in a UniSA research project:
Emergency Department Nursing Practices:
Perspectives of Family Carers for a Loved One
with Borderline Personality Disorder
Primary carers can play a central role in supporting consumers as they receive emergency care services. Carers often have a unique experience of nursing care during a crisis. This study seeks to understand carer views on preferred nursing practices and communication in emergency department care
• Over 18 years of age
• Provide care for a person with BPD
• Presented to a South Australian ED, related to care recipients BPD within the last 2 years
• Carer engaged with nursing staff
Carers are invited to participate in one focus group meeting (group interview and discussion). This will be 60-90 minutes long.
Focus groups will be held at the University of South Australia, City East Campus, cnr North Terrace and Frome Street, Adelaide. Meeting will be held in a private room. Participants will receive an honorarium (gift card) for their contribution and time toward the study.
If you are interested in participating or would like more information about this study please contact:
Ms Kristy Acres, Honours Research Student and Registered Nurse, UniSA.
Phone: 08 08302 1426
Whilst there is much information about the way consumers would like to be treated in emergency departments, there is nothing on what carers and families want, and what would help to reduce stress and help us in our caring role.
I know this is a hard thing for us to get our head around as we always focus on what is best for our loved one. However this time I want you to think about yourself.
I have thought about it all for a while and these are the sort of things I want.
• First of all I would like my daughter to be treated with respect rather than as she is sometimes asked by the nurse “not you again. What is it this time?”
• After she has been seen by a nurse I would have liked information about her illness. What does it mean when they say she has BPD? I got this type of information when Bob had a heart attack. Why didn’t I get it with BPD?
• I would like to know how they are going to help her.
• I would like to be treated with respect and as someone who can give them information about how my daughter was in the past few days before we came in to the ED in crisis. I would like to listened to.
Does that all give you a better idea of what this study is about? There have been no studies about this done anywhere else and could be used to train nurses better and thus help us in our already stressful role.
I would urge you all to think about what would help YOU!! And then contact Kristy to be involved in this study.
We really have a chance to make big changes in ED’s.
These are the questions she will ask those of us who take part.
• What are the experiences of carers when they are supporting consumers with BPD to access ED based care?
• What are the views and expectations of carers towards nursing practices and communication within the ED?
• What ED nursing practices do carers see as effective and preferred?
• What are carer’s views on overcoming barriers to effective nursing care for consumers with BPD and for themselves in the caring role?
In short, we are looking at what the carer needs, their views and experiences.
This is because it has not been previously documented, the study is trying to capture what is the carer experience in the ED interaction, but more importantly what did the carer need when they were in ED.
This study is focused on the carer’s needs, not what the carer feels the consumer needed in the ED. This is because there is a body of evidence for consumers and clinicians but at present, evidence on what best helps a carer to engage with ED, respond to crisis etc. has been over looked.
One example is when a person presents for chest pain, a nurse may provide education about the signs and symptoms of chest pains and communicate with the family about what it is.
Documenting the voices of carers is important, I hope this will start to collect a picture on what carers need in responding to crisis.
I hope many of you will take part.
Without your input we have nothing.
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This website is produced by members of the Sanctuary Support Group. We are not mental health professionals nor clinicians. We are ordinary people who care for someone with BPD. This website is a collection of information that we have found helpful or of interest in the context of our own lived experiences. The content of this website is not a substitute for independent professional advice, diagnosis or treatment.